September 2009

I know what I’LL be for Halloween!

Posted on September 29, 2009 at 8:27 pm in

Trick or Treat....come a little closer! Now, the mouth is under that white block...

Recipes with fava beans, anyone?

The eyeholes are a special concession for claustrophobia…and I think they will do the trick. It is possible to be held in place if my eyes are free to roam. The treatments begin October 14 and continue until 35 treatments have been applied. No treatment on weekends or Turkeyday or even the Friday after Turkeyday. They haven’t caught on to Columbus day or Veterans’ Day…still room for improvement.

Next up, meeting the chemotherapy team. I wonder if their costumes can compete.

rant too soon!

Posted on September 28, 2009 at 1:30 pm in

JH has now followed up on the reminder about the VPshunt; they have cancelled the MRI and will let us wander in at 2:30PM instead of busting out of TP at 6:30AM for a 7:30 arrival. yea.

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Monday, Monday

Posted on September 28, 2009 at 12:14 pm in

The phone yanked me out of sleep: the radiation oncologist’s nurse calling to firm up tomorrow’s simulation appointment. I couldn’t rally to follow what she was saying, except to realize that she thinks we need to be at the hospital at 7:30AM tomorrow. Then, after I hung up I thought–no, they can’t do an MRI unless there is a neurologist on hand to re-set the valve on my VP shunt. When I called her back to point this out, she said they might skip the MRI…now, wait a minute–wasn’t the impending shut-down of the MRI the reason for the insanely early arrival time?

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Saturday’s Child

Posted on September 26, 2009 at 5:56 pm in

It’s raining steadily this afternoon.  It’s great for our final tomatoes and it’s great for guilt-free nap-taking.  This is what I am encouraging Cathy to do, right now.  She started running a slight fever last night, but nothing that hasn’t been controlled with a little bit of medicine.  However, it’s making her more fatigued.

Home Sweet Home

Posted on September 25, 2009 at 3:02 pm in

It’s Friday and Cathy is feeling more pain today.  The anesthetic is wearing off—a good thing—but it means that she is relying on the pain pills only.  Her appetite seems to be coming back, as she noted that she isn’t getting enough ice cream (is there ever enough?).  She’s sleeping a lot but is eager to read emails and keep in touch with the outside world.  Charly and Lucy, our dogs, are devoted to her and sleep on the bed with her all day, especially when there’s an ice cream bowl around.

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THE BEST OF ALL POSSIBLE OPTIONS !

Posted on September 24, 2009 at 7:41 pm in

These are the words of gold that came from the lips of our  wonderful surgeon, Dr. Christine Gourin, this afternoon after Cathy’s surgery was completed.  I can’t begin to convey the relief we both felt.  It was like taking off those pantyhose that are 3 sizes too small on a hot, humid summer day.

It began earlier in the morning, when we arrived at Johns Hopkins.  Of course, we got lost on the way, even with our fancy GPS (I guess it helps to put in the correct address). After the initial check-in, they took Cathy away to put on her patient’s gown, lie in the gurney and get an IV inserted.  Then I got to stay with her for about 45 minutes before they took her into the operating room.  Cathy had spoken to the surgeon before I got in, but on the sheets she signed, we were informed that she was to have a biopsy of the right tonsil mass, an esophagogastroduodenoscopy, biopsies at the base of the tongue on both sides and a possible tonsillectomy—all this ‘just in case’.  Fortunately, the surgeon did not see anything beyond the ‘white pearl’ shaped tumor in the tonsil.  She did take the left tonsil out, too, because she wants to check it.  I think, though I don’t know for sure, that if the left tonsil is gone, the likelihood of the cancer spreading outside of the tonsil area is decreased.  Dr. Gourin called Cathy a trooper and there, I know, she’s right again.

When I got a chance to go back to pre-op, she was awake, looking a bit like a chipmunk on an autumn day, with a load of acorns.  She instantly tried to speak which lead to what I called ‘pigeon sign language’.  Pointing, thumbs up or down and loads of head nodding until I could get her a pad of paper and pen.  Then she peppered me with questions about what the doctors had said, what’s next, etc.  I joked with her that it might be a blessing in disguise that she will have to use a dry erase board for a while.  This brought a smile to her face and just the slightest, sweetest, squeaky bit of chuckling.  I knew my Cathy was back.

We waited about an hour and a half for the prescriptions to be filled and for the nurse to keep her drugged up for the ride home.  This was classic Cathy, too.  She kept drifting in and out of focus, repeating what she had just told me and even suggested that these were much better drugs than those we had in the 60s.  Finally, I picked up the medicine, came back to the front of the hospital with the car and there she was, in her brightly colored sweater that my mother had given her, with a big groggy smile.

We got on the road to Washington (ugh, I-95 in rush hour out of B-mo).  One stop one the way at McDonald’s to get the first of many milkshakes so that she could stomach her pain pills.

Finally, home in Takoma Park at around 6:15 PM.  We were greeted at the door by two black poodles who were eagerly waiting.  On up to bed and tucked in for the night.

The next few days, she is supposed to stay in bed, eat soft, liquidy foods, stayed drugged to the max and REST.  Ha!  I might have to assume the personality of Nurse Rachet from One Flew Over the Coo-coo’s Nest.  In a week or so, we’ll head back up to Baltimore to visit with the radiation oncologist to set up an appointment schedule for her treatments.

We are both so glad we got the biopsy and forthcoming pathology report.  The results will tell us precisely what type (HPV-related?), size and level of involvement of the cancer.  This information will impact the treatment and prognosis.

Then, we’ll take the next step, one day at a time.

Thank you ALL for your good wishes.  We felt the love all day.

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Good news from Baltimore

Posted on September 24, 2009 at 3:00 pm in

I am posting what I know . The tonsils were removed, the cancer is located in only one node about the size of a pearl. No more surgery. The doctor said it is the best possible scenario. They will be home tonight.
- from Beth’s sister, Kat
More to follow from Beth and/or Cathy…

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Waiting on Thursday, Part Two

Posted on September 23, 2009 at 11:43 am in
TianaBarbara

Tiana Robison and Barbara Helmick - September 19, 2009 - Married in Wapello, Iowa

Our two wonderful friends, Tiana and Barbara came to visit us last night to cheer us on for the journey we are about to undertake.  They had just returned from their wedding and celebration, finally legalized in Barbara’s home state of Iowa.  Their joy from this occasion is infectious.  As infectious as from the wedding we attended over the weekend of our cousin, Neil Metzger in Saint Louis, Missouri.

As we look forward, it is in these moments that we remember our true priorities in life:  being with the ones you love, sharing their joy which becomes your joy.

The ‘gift’ of a cancer diagnosis is the ‘in-your-face’ reminder, if in the hum drum routine of day to day life, to shift or refocus your priorities and remember what is truly important.

Waiting on Thursday

Posted on September 23, 2009 at 11:20 am in

Our good friends Julien Chapuis and Doug Kline who live in Berlin, Germany wanted to share this photograph of a baby tapir, born in the zoo there.  They say that it brings them much joy and it is posted with that spirit:  that it will bring joy to us on the eve of biopsy/surgery day.

        Born and lives in the zoo in Berlin, Germany

Born and lives in the zoo in Berlin, Germany

Another countdown

Posted on September 22, 2009 at 8:58 am in

While we were in St. Louis the Medical co-ordinator called with a new biopsy date: Thursday the 24th at 1:30PM. So today is two days out.

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